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2021 Bracket Challenge https://www.rallyforaly.org/events-fundraisers/stone-creek-coffee-fundraiser monthly 0.5 2020-10-29 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1603812402975-MUO3L2265C0NJTFUQI4S/IMG_8565.jpg Events & Fundraisers - Stone Creek Coffee Fundraiser https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1603812144614-XU0S1UI3168YFO8I0F7H/IMG_8564.JPG Events & Fundraisers - Stone Creek Coffee Fundraiser https://www.rallyforaly.org/events-fundraisers/briggs-als-run-walk-for-childrens-wisconsin monthly 0.5 2021-05-11 https://www.rallyforaly.org/events-fundraisers/oktoberfest monthly 0.5 2021-08-19 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1599919796903-84G008TAEL7DG28NXWWV/2020+Oktoberfest+Flyer.pptx.jpg Events & Fundraisers - Virtual Oktoberfest https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1600215589397-N724NJ7P83VYXA3KRED1/Leffs%2BLogo%2B2011.jpg Events & Fundraisers - Virtual Oktoberfest Presenting Sponsor https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1600216917494-G1PUSVQLW92NAJME9FCZ/REYN%2Bwith%2Bwebsite.jpg Events & Fundraisers - 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Virtual Oktoberfest https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1600214633879-SCBE129QVX3DZSFJUVX2/Molson+Coors.png Events & Fundraisers - Virtual Oktoberfest https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1600214634145-F97KAA5HMR1KN8WBU090/Beer+Capitol.png Events & Fundraisers - Virtual Oktoberfest https://www.rallyforaly.org/mission daily 0.75 2020-07-23 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593225196985-KKYA2ZTPCZT203YHLJYI/Aly_headshot.jpg Mission - Our Mission: Rooted in the Pape family’s faith, values and commitment to each other, Rally for Aly seeks to sustain the spirit and generosity of Doug and Alyssa Pape by providing support, education and resources to organizations that have touched our family, as well as individuals and families facing similar circumstances. https://www.rallyforaly.org/news-notes daily 0.75 2020-10-15 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1602774138834-KD7XQ93RDCIIUI6KHX17/bayleaves-oct2020.png News & Notes - Party at the Papes https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593224696029-QL8CKCKFAK1O4TWEO0D6/47355510_2228926134022506_9015696808881422336_o.jpg News & Notes “A Place of Honor” December 18, 2018 Rally for Aly began simply as a way to honor and remember Alyssa. It has grown into something no one in the Pape family could have imagined. The photo above was taken on a recent trip to the hospital when a family member spotted the Alyssa Anne Pape Endowment Fund among so many other incredible funds. It makes us all pause and reflect on all of the people out there who love and support us. Together, we keep Alyssa’s spirit alive. https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593224324612-NS70CLNITABS8W6N5FQ4/UNADJUSTEDNONRAW_thumb_345.jpg News & Notes https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593223553870-RSYDV74J78P5C0L2CJM7/UNADJUSTEDNONRAW_thumb_502.jpg News & Notes https://www.rallyforaly.org/home daily 1.0 2020-07-02 https://www.rallyforaly.org/contact-us daily 0.75 2020-07-23 https://www.rallyforaly.org/facts-milestones daily 0.75 2025-10-04 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592597416866-ZOKZB9H82UYIS75GC3SU/team%2Bphoto%2B2016.jpg Facts & Milestones https://www.rallyforaly.org/background daily 0.75 2020-07-23 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592587151361-9USLYS0QELIFFVJSLIWX/UNADJUSTEDNONRAW_thumb_1881.jpg Background - Why We Rally: Aly’s Story As told by Lynn, Aly’s Mom With four healthy, young boys we never really gave a second thought to Children’s Hospital of Wisconsin. All of our boys received great care from Dr. David Lautz, a Children’s Medical Group pediatrician, but that was the extent of our experience. Then our Alyssa came along. As our fifth child and only girl, she brightened our world in countless ways. She introduced us to things we hadn’t really discovered yet, like princesses, playing house and the colors pink and purple. Not long after she was born, it became clear that Alyssa had some health issues that were unique and so, through her, we also discovered just how special Children’s Wisconsin really is and how fortunate we are to have it right in our own back yard. https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592597732156-3MLSNZRJGM0RD84E4YI1/doug_aly_als%2Brun.jpg Background - Alyssa was born in September 1988 with clubfeet. We were referred to the orthopedic clinic at Children’s for casting. It was there that we met Dr. John Thometz who suggested, after evaluating Alyssa’s bone structure and our family’s history of cardiac issues, that there might be more to her condition than we first thought. From there we were referred to a genetic counselor and, ultimately, to the heart center. Alyssa had an echocardiogram, which revealed a small opening in her heart that needed to be repaired. By the time she was six months old, she was diagnosed with Marfan syndrome (a genetic connective tissue disorder that affects the heart, aorta, eyes and skeletal system) and before even celebrating her first birthday she underwent her first heart surgery. https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592588146803-QVHCRNYPETIVVGSYQA71/heart%2Bballoons.jpg Background - Alyssa passed away in June 2005 at the age of 16 from complications related to Loeys-Dietz syndrome, a connective tissue disorder that was first identified that same year. Loeys-Dietz is similar to Marfan’s with some distinct differences, which helped to explain why Alyssa’s symptoms and issues never completely fit the Marfan’s diagnosis. Brigg’s & Al’s Run & Walk for Children’s was always important to Alyssa, who first participated as a Children’s Champion. There were some years when she was too weak to walk, but she was always there sporting her infectious smile. Happily, there were a few years that she walked and she was so proud of herself for making it the entire way! https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592588411007-OYOORV7XR2PHG1XKKZ8Z/lynn_grandkids.jpg Background - Our experience doesn’t end there, however. In many respects things have come full circle for our family. In 2007, our son Andrew underwent surgery for cardiac complications. He and his two kids are now patients at the Herma Heart Institute. The team there has provided exceptional care to all of them and has helped our other sons explore and understand the genetic implications of Loeys-Dietz syndrome. We now have more knowledge about the syndrome Alyssa battled. The money and research is helping us make great strides in assisting other families who are facing this same situation. https://www.rallyforaly.org/our-partners daily 0.75 2022-09-01 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/d2f7d00d-dec9-44f4-8896-a39ddf6173ad/DB711F58-BD5D-4915-A3E0-48BD3011A8F6_1_201_a.jpeg Our Partners - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rallyforaly.org/newsletter-archive daily 0.75 2021-10-25 https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1627059548507-0KMDSHNO8V1P9ARZDMTX/oktoberfest.jpg Newsletter Archive - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592439148125-SIL15BPPZHYIO8TISAIV/Rally_Aly_Halo_hi+res.jpg Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/8980ee36-8bad-43b1-9f21-6b80525238b0/rallyforaly-leffsopen.png Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1595522722642-9PMCVKJ9UZL2KQ2JYUFT/Screen+Shot+2020-07-23+at+11.06.03+AM.png Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592439148125-SIL15BPPZHYIO8TISAIV/Rally_Aly_Halo_hi+res.jpg Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1622740451094-CWDPM4ZV6703MYQP2PEP/coffee.jpg Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1592439148125-SIL15BPPZHYIO8TISAIV/Rally_Aly_Halo_hi+res.jpg Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1600462996534-XWDCWNE3RSBFGVI1IM2F/IMG_8309+2.JPG Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1600462598414-3832OQPP6OGUT1GVAAJ1/Screen+Shot+2020-09-18+at+3.55.47+PM.png Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593786212455-LZ38F59Q5K0MP2BHY65R/Screen+Shot+2020-07-03+at+9.09.17+AM.png Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593786634515-RW1FKZ9816BODXGACOSA/Screen+Shot+2020-07-03+at+9.30.09+AM.png Newsletter Archive https://images.squarespace-cdn.com/content/v1/5eeab11d82ca746c0de6d8bc/1593787119036-1EV5UWGQ9C7MGJF320MU/Screen+Shot+2020-07-03+at+9.38.27+AM.png Newsletter Archive